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Connacht Tribune

Galway woman’s plea for double-lung transplant

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A 68-year-old Galway woman with an incurable respiratory disease has spoken of her devastation after being denied a double-lung transplant and told that she is to be left to die.

Teresa Kelly from Loughrea developed pulmonary fibrosis after metallic clips were implanted in her leg during surgery on her veins twelve years ago. She was highly allergic to nickel contained in the clips.

The mother-of-one says she was never consulted about the use of the clips, and did not know they were in her body until six-and-a-half years after the surgery. By that time, she had developed a number of incurable complications.

Ms Kelly was told last October that she would need a double-lung transplant, and underwent tests and preparation for the life-saving operation. However, she was told last month that the transplant would not be going ahead.

“I was brought by ambulance from Galway to Dublin especially for the doctor to tell me that he wasn’t doing my double-lung transplant, and he wouldn’t tell me why,” she said.

“So, I asked ‘Where does that leave me? Where do I go from here?’ He didn’t answer. I said ‘Am I just left to die?’ and he just nodded and said ‘Yes,’” recalled the Galway woman.

“He told me straight out that I have no other choice but that I am left to die, and he said my transplant wasn’t worth it. That is exactly what he said,” she added.

Ms Kelly has continued to ask medics in Galway and Dublin why she was refused a double-lung transplant, but says she has been met with silence and obfuscation.

She claims that doctors are unwilling to carry out a procedure that could highlight errors that were made in implanting the metallic clips, which ultimately resulted in her condition.

“They would rather see me die than expose their own mistakes,” she said. “And I am left without any answers. It is absolutely devastating.”

Ms Kelly, who has three grandchildren, underwent vascular surgery on her right leg in 2005, during which ten metallic clips were inserted and remained in her body. “They never told me and they never asked if I had an allergy,” she explained.

The allergic reaction to nickel in the clips resulted in an incurable autoimmune disease called ANCA vasculitis, which attacks the body’s own cells and tissues.

This resulted in recurring infections, and Ms Kelly was prescribed nitrofurantoin – an antibiotic usually employed only for short-term use. She remained on this medication for six-and-a-half years.

In 2011, she was diagnosed with pulmonary fibrosis – an incurable disease that causes scarring of the lungs. It is a known complication of long-term use of nitrofurantoin.

It was at this stage that the presence of the metallic clips in her leg was discovered. They were removed and the recurring infections abated.

“I just want them to tell me why they won’t do the double-lung transplant,” said Ms Kelly, who ran her own hairdressing business until 2008.

Last week, she wrote to Taoiseach Leo Varadkar and Minister for Health Simon Harris, seeking an explanation as to why she has been denied life-saving surgery and told that she is to be left to die. She is awaiting substantive replies.

A spokesperson for Saolta University Healthcare Group undertook to investigate the circumstances of the case, but later reverted to state that no comment could be provided in relation to individual patients.

A HSE spokesperson also refused to comment on the same basis, but advised that any patient with concerns about their care should contact their consultant directly.

Connacht Tribune

Adults and young pupils collaborate on children’s book now in the shops

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A new book – a collaborative collection of stories and poems written by the Oughterard Writers Group and the children from the local primary school – was officially launched in style last week.

Tell me a Story was officially launched at Scoil Chuimín agus Caitríona, Oughterard, by the principal, Micheál O’Domhnaill – to the delight of the children, parents, friends and writers in attendance and those watching live on zoom.
by Jess Walsh and Barbara Dunne
Tell Me a Story is a collaboration between the Oughterard Writers Group and the children of last year’s 4th class from Scoil Chuimín agus Catríona. It had its genesis in January when the writers applied to Galway County Council for funding for the story book.

The book is the culmination of several months’ work, where stories and poems written by the writers, were sent to the children.

The group was unable to meet the children in person, due to Covid restrictions, but met them several times on Zoom, facilitated by Pete Mullineaux, and James O’Donnell, their teacher. And after months of hard work by the children, their handwritten work and illustrations were then passed back to the writers for design and completion.

Each story in the book tells a different tale. The children responded to the story they liked best, and the book is interspersed with wonderful drawings from the children, with new story endings and poems, along with some of the children’s own handwriting.

It was a special night for all to finally meet in person at the official launch.

The children were presented with their contributor copy by the writer of the piece they worked on, and guests were treated to some selected readings from the book by the children themselves.

The evening was rounded off by Muinteoir J O Donnell reading his poem, Last Night’s Wind from the book, and it was a very fitting ending to a wonderful evening.

The book costs €10 (with 50% of profits being donated Scoil Chuimín agus Caitríona) and can be bought online from Kenny’s and Charlie Byrne’s bookshops in Galway, and from Moycullen Bookshop and shops in Oughterard.

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Connacht Tribune

Landowners see red at poor greenway dialogue

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A decision on the route chosen for the greenway between Athlone and Galway City is expected to be announced before Christmas – despite the vehement opposition of a group of landowners.

Opponents staged another protest outside County Hall last Monday to up the pressure on councillors to continue to voice disquiet over the way the project is being pursued by Galway County Council and RPS consultants.

Jean Molloy from Stoney Island outside Portumna, a member of the East Galway Action Group, said there was a complete lack of respect by the project team for the major stakeholders who had the most to lose – those whose land would be taken by the greenway.

Her family, who run a small farm on the land earmarked for the route, had received two letters from the team and not a single phone call over their concerns. She had attended public meetings to outline their preferred route but believes the consultants are not listening.

“We’re expected to give up everything but yet we don’t see a real benefit in the way the route is going as it doesn’t connect villages or neighbours, our kids can’t use it to cycle to school,” she insisted.

“The preferred route is in remote areas off-road, which may suit tourists a few times a year but won’t be safe for us. Why can’t they go along the road, as long as it’s segregated? Yet, we’re expected to give up our livelihoods, our privacy, our security.”

The campaigners allege the process has been flawed from the start.

They accuse those driving the project of “underhanded” tactics and adopting a “divide and conquer approach” and say consultants have failed to engage with every landowner and resident affected in the route corridor. They allege the team is refusing to meeting landowners in groups.

“They have told landowners that a final route is to be released before Christmas, but this is just not feasible. It’s important that the general public is made aware of how the individuals at the centre of the proposed cycleway are being treated.”

Director of service in the infrastructure and operations unit of Galway County Council, Derek Pender, has refuted claims of intimidation and a lack of engagement.

Last September he insisted they had undertaken well over 1,500 face-to-face or phone call consultations with 350 potentially impacted private landowners over 15 months.

The preferred route starts near Ballyloughane Beach, east of Galway City, passing through Oranmore, Rinville, Clarinbridge, Kilcolgan, Kinvara, Gort, Woodford, Portumna, Meelick, Clonfert, Ballinasloe, Shannonbridge, and finishing at Athlone Castle before linking with the cycleway to Dublin.

He claimed there was support for approximately 90% of the route and that the so-called hybrid model – where the cycleway would go along a national or regional road – would only be used in discreet isolated areas that were specific pinch points.

Cycleways beside long stretches of road were not safe, he has previously contended.

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Connacht Tribune

Clifden roster dispute escalates despite HSE recruitment

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Staff at both a hospital and nursing home in Clifden are balloting for industrial action over changes to the rosters – despite a targeted recruitment campaign for nurses that has resulted in over 20 applications.

Last week Clifden District Hospital – beset by critical staff shortages – closed for four days with the HSE claiming that no patients were booked into the facility with respite and step-down beds for recuperating patients who can be medically discharged from an acute hospital but deemed not well enough to go home.

This was the same week when the HSE admitted that 4,662 bed days were lost at University Hospital Galway (UHG) and Merlin Park and 1,295 at Portiuncula Hospital in the first nine months of this year due to delayed discharges.

The HSE said the four days could be used by staff at Clifden District Hospital and St Anne’s Community Nursing Unit to take leave accrued due to overtime they had built up over filling in shifts due to a lack of workers.

Anne Burke, Galway industrial relations officer for the Irish Nurses and Midwives Organisation (INMO), said the union did not accept there was no demand for beds in a facility such as the Clifden District Hospital.

“They have orchestrated this downgrading of the hospital because we believe they want it for another purpose which they have not yet revealed. If you don’t advertise you’re open for business you won’t get the business. We think they don’t want it to be a viable option,” she exclaimed.

“They have always told us that staff weren’t interested in coming to Clifden. But there was no meaningful recruitment. Now, finally, they advertised specifically for jobs in Clifden, and we have been told that 29 applications were submitted and 21 are deemed eligible for interview, which we understand will take place next week.”

The INMO and SIPTU [Services, Industrial, Professional and Technical Union] are to ballot members from the two facilities for industrial action next week over changes to the rosters.

They claim the HSE is breaching the Building Momentum public service agreement which requires changes to rosters to be done by agreement between management and staff. A previous memo withdrawing the staff right to seven uncertified sick leave days was rescinded following lengthy talks at the Workplace Relations Commission.

Over 700 people attending a public meeting last September over fears Clifden District Hospital was being closed by the HSE. The hospital has had 12 beds for patients since the Covid pandemic, down from 30 some years ago.

After meeting with local politicians, the organisation issued a press release stating the facility would not close but said the respite and step-down services “remain on a day-to-day footing” due to staff shortages.

“The HSE has agreed to meet with GPs in the Clifden area to discuss the needs in the community for respite and step-down beds.”

They also announced they would run a ‘bespoke’ recruitment campaign for nurses.

The INMO estimates that seven additional nurses are needed for the hospital and a further six are required for the nursing unit to maintain rosters.

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